When our daughter Regan was diagnosed with Cerebral Palsy at age 2 1/2 we knew that medical care was going to be a expensive. Very good friends of ours had a son that was several years older with CP and we turned to them for medical advice and which doctors they reccomended. They had been taking their son to Scottish Rites Children's Hospital in Dallas, TX.
Scottish Rites is operated fully on the generosity of the Masonic organization. They exclusively see kids with neurological and orthopedic conditions, and also have an incredible dyslexia program. The way to get in is to find your local masonic lodge and get them to reccomend your child for services, and go through an application process.
The wonderful thing is that almost everything we do through Scottish Rites is free to us. We see a pediatric neurologist, pediatric orthopedist, she gets her AFO's free too. Now when we order major equipment like a new walker or wheelchair, then we have to go through our insurance. But because I don't have to ask them for every single thing, they are always more than happy to oblige us on the big things.
Now Dallas is a 5 hour drive for us, but the two times a year we make the trip is still cheaper than us paying medical care. We always try to get several appointment in one day, and drive up and back in one day. They also have an incredible resource center, that we found out about many of Regan's summer camps through, which I will talk more about in a later post. I highly reccomend this faciity, and our care we have received from them has been excellent.
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