Ever since the article came out about Regan in the local paper, I am hearing all kinds of stories of people who know people with cerebral palsy or are parenting/related to a CP child. The only common thread I can seem to find is that nobody has anything in common. You can imagine how frustrating it is to have a disability that runs the gamut of the spectrum with no cure. This is no cookie cutter CP factory that runs all the kids through it with the same exact problems to the same degree.
Each story is as unique and different as the child it is about. Some children have seizures (we never did), some children have speaking issues, can walk, some drool...you get the picture. It isn't a store where you pick up your CP child and checkout through the POS systems and have your child ready to be treated just like every one else's because just like no two cases of CP are alike....the treatment is different for every child too. As much as I have loved hearing every story and talking with every parent it has made me honestly a little more frustrated that we don't have more in common than having a child with CP.
This week we finally had to deal with Regan and her puberty coming to fruition which I had posted about months ago begging for pleas of advice and help. I combed the Internet looking for solutions for bad fine motor skills and approaching womanhood (to put it delicately). There was nothing to be found, and it was a little depressing. Surely someone else had researched or studied solutions or had ideas. Once again we end up carving our own way, and hope that we can serve as a beacon of light for someone else going through a similar situation looking for answers too.
If you can't tell it has been one of "those" weeks...and we just smile and persevere.
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